Mitigation and Prevention
This study focuses on qualitative data collected to better understand the experiences of adults living with long-COVID in the United Kingdom who participate in online support groups. These support groups were predominantly conducted through Facebook and WhatsApp, and individuals were asked to reflect on how they engage with the support groups and what external influences are influencing their experience with long-COVID. Participants explained that the support groups provided a place to connect with others, advocate for needed resources and information, and share therapies and management techniques in the absence of clear instruction from the medical community. Additional benefits included diversity of participants, reduced feelings of isolation, and improved mental wellbeing through validation and encouragement. Negative aspects of the support groups included challenges with the amount of stories and information shared, limited in-person interaction, and increased burden on group moderators.