Data Collection and Reporting
This report recommends that the National Institutes of Health (NIH) adopt new practices for collecting data on sex, gender, and sexual orientation — including collecting gender data by default, and not conflating gender with sex as a biological variable. The report recommends standardized language to be used in survey questions that ask about a respondent’s sex, gender identity, and sexual orientation. Better measurements will improve data quality, as well as the NIH’s ability to identify LGBTQI+ populations and understand the challenges they face.